Vascular Eds Vs Hypermobile Eds. Most of the rare monogenic EDS types can have neurological f

Most of the rare monogenic EDS types can have neurological features, which are often part of major or Nov 25, 2025 · Ehlers-Danlos syndrome (EDS) is a heterogeneous group of inherited connective tissue disorders characterized by hyperelastic skin, hypermobile joints, and vascular and tissue fragility Hypermobile Ehlers-Danlos Syndrome (hEDS) What is hypermobile Ehlers-Danlos syndrome (hEDS)? hEDS is a heritable connective tissue disorder that causes generalized joint hypermobility, joint instability, and chronic pain. What makes a condition “rare”? A condition is considered rare if it affects less than 1 in 2000 people. It is a life-threatening condition that affects the body’s internal structures rather than just the joints. In some cases, hypermobile joints are a feature of connective tissue disorders. Misdiagnosis matters. How to get tested for EDS? ‍ To get tested for EDS, start by consulting your primary care physician, who may refer you to a specialist such as a geneticist, rheumatologist, or a specialty clinic for Ehlers-Danlos Syndrome for further evaluation and testing. There are 13 types of Ehlers-Danlos syndrome, most of which are indeed rare 2. There is no up-to-date research to tell us exactly how frequently it occurs. Ehlers-Danlos Syndrome (EDS) is one of the most complex conditions affecting the human body because EDS impacts almost every system. What is Ehlers-Danlos Syndrome? The Ehlers-Danlos syndromes (EDS) are a group of varied, heritable connective tissue disorders affecting the quality of collagen and other connective tissues in the body.

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